Young Onset Parkinson’s eXchange App (YOP-X) Official Release
Last week Jen Harkness, the coordinator of the Young at Park Canberra Group, travelled to Adelaide for Parkinson’s South Australia’s one-day seminar. The star of the day was the official release of the first ever app for people living with Young Onset Parkinson’s, aptly named the Young Onset Parkinson’s eXchange App or YOP-X. This project…
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Morning Tea with the OT – On Time, Every Time! – Managing Parkinson’s Medications
The next in our popular seminar series ‘Morning Tea with the OT’ is coming up soon. ‘On Time, Every Time!’ will address the important topic of managing your Parkinson’s medications. Date: Wednesday 23rd JuneTime: 10am-12noonWhere: The Henry in Higgins Registrations are now open in Eventbrite. Please see the attached flyer for all details. OT-Seminar-Flyer-June-2021Download
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SINEMET Supply Shortage Update – February 2021
We have received the following update to the supply of SINEMET CR® (levodopa/carbidopa) 200 mg/50 mg controlled release tablets. The long-standing shortage of a formulation of Levodopa/Carbidopa 200/50 (Sinemet CR) has been resolved. The manufacturers, MSD (Merck, Sharp & Dohme) Australia, have announced that this medication is once again available. The only change is that…
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Welcome Kate Sterrenberg, OT
PACT’s recent Occupational Therapist grant from the John James Foundation’s Community Health Program has enabled us to engage a professional Occupational Therapist, Kate Sterrenberg, to provide OT services to our members for one day a week throughout 2021. Many of you will have already met Kate in this capacity or in her volunteer capacity in…
Guys & Games Gathering
This is a group for men with Parkinson’s. It’s based on the idea of meeting in a casual and relaxed setting where recreational games form a backdrop to simply chatting. The games range from tennis to boules and Finska, from backgammon and boggle to board games, but anything of interest really. The chat ranges from…
Bushlarks resume 1st February
The Bushlarks choir for people with Parkinson’s and their carers/partners will start back on Monday February 1st. We’ve had a strange year, singing on Zoom for over 30 weeks because of COVID, but in November 2020 we felt safe enough to reconvene in our lovely rehearsal venue, St Simon’s Anglican Church, Kaleen. On our last…
SINEMET Supply Shortage Update – May 2020
Since August 2018 there has been an international supply shortage of Sinemet. In July 2019 we received important clarifying advice in the form of a joint position statement by the Australasian Neuroscience Nurses Association (ANNA) Movement Disorder Chapter (MDC) committee in collaboration with the Movement Disorder Society of Australia and New Zealand (MDSANZ). In May…
Parkinson’s Group Education
The Parkinson’s Advanced Practice Nurse and the Brindabella Rehabilitation Service are collaborating to present monthly group education sessions for people with a diagnosis of Parkinson’s Disease and their carers. This education will address Parkinson’s and the available resources within the ACT and surrounding areas. Each session will cover: a brief overview of what Parkinson’s Disease…
Parkinson’s and Continence
At the Tuesday support group meeting on 22nd October, Lisa Maunsell, a Health Promotion Officer for NSW/ACT for the Continence Foundation of Australia, spoke to the group about how to look after one’s pelvic floor, bladder and bowels, and incontinence. 28 members attended the presentation which included the following and other information: a) what is…
Parkinson’s ACT Store
In the lead-up to Walk in the Park we created a store using PrintLocker and designed some themed t-shirts and caps. We were keen to create a visual splash at the Walk, and we think we achieved that. The store is still there and operational. We’ll work on it and make other products available over…
SINEMET Supply Shortage Update – April 2019
On 21st February PACT was advised by Merck, Sharp and Dohme (Australia) of the status of the Sinemet shortage. MSD requested that we communicate the attached notice to our members. If you are using Sinemet please read their advice here In essence, the advice is that the shortage is expected to continue through 2019, and…
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Living a Healthy Life with Chronic Conditions – FREE Course
ACT Health conducts a free course focusing on the management of chronic health conditions. Carers and friends are encouraged to attend. The course runs for six consecutive weeks, 2.5 hours per week, and includes topics such as fatigue, pain management, anxiety, depression, shortness of breath, dealing with negative emotions, communicating with health providers, physical activity,…
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