Last week Jen Harkness, the coordinator of the Young at Park Canberra Group, travelled to Adelaide for Parkinson's South Australia's one-day seminar. The star of the day was the official release of the first ever app for people living with Young Onset Parkinson's, aptly named the Young Onset Parkinson's eXchange App or YOP-X.
This project commenced in 2019 as a result of funding via a grant from NDIS and the vision and drive from Parkinson's SA to run with it. People living with Young Onset Parkinson's Disease. (YOPD) from around Australia and from different demographics were invited to be part of the working group. Those involved acted as a 'living lab' of design members to support the development of the YOP-X app. This is a world first and a comprehensive information portal and resource hub designed to support individuals living with YOPD as well as the primary support people (carers) and health professionals who play a vital role in caring for them.
The vision was clear, it was going to contain information obtained by those who would be the end users. The information was going to be relevant and current.
The six pillars featured are
MENTAL HEALTH & EMOTIONAL WELLBEING
EMPLOYMENT & LEGAL
EXERCISE & NUTRITION
RELATIONSHIPS & INTIMACY
SLEEP, FATIGUE & ENERGY
CHANGE YOUR BRAIN
Other features of the YOP-X app are:
- Personalise your pillars
- See prompts and reminders
- Choose your workout
- Enhance your intimacy
- Switch your thoughts
- Change your brain
- Negotiate with your employer
- Plan your finances
- Get legal advice.
Another important feature is the NDIS Wallet, which helps applications manoeuvre their way through the NDIS application process.
The app is not limited to those with Young Onset Parkinson's and will contain information for everyone.
For more information check out the website at youngonsetparkinsons.org.au and download the app from Google Play or the Apple App Store.
Search YOP-X and download for free.
Available now for iOS & Android