FACT SHEET – NDIS and Parkinson’s – PACT Can Help
What is the NDIS?
The NDIS is Australia's National Disability Insurance Scheme.
What does the NDIS do?
The NDIS aims to provide participants with the 'reasonable and necessary supports they need to live an ordinary life'. The support provided is specific to the individual needs of the participant. Further information on the NDIS is at https://www.ndis.gov.au/understanding .
I have Parkinson's Disease. Can I qualify for the NDIS?
If you have a confirmed diagnosis of Parkinson's, are aged between 7 and 65 when your NDIS Access Request is received, and are an Australian citizen or permanent resident you may qualify for support under the NDIS. Your eligibility for support is assessed by the NDIS based on an application that you make.
I'm Aged Over 65.
Unfortunately, an NDIS Access Request received once you are aged 65 or older will not be approved and you will be unable to access the NDIS. You may be able to seek assistance under 'My Aged Care'. Information on 'My Aged Care' is available at https://www.myagedcare.gov.au/ or call them on telephone number 1800 200 422.
How do I get assessed by the NDIS?
To start your NDIS assessment contact the National Disability Insurance Agency (NDIA) on telephone number 1800 800 110 or visit an NDIA office. In the ACT these are in Braddon and Greenway. A call to 1800 800 110 will confirm NDIA office addresses and opening hours. Contact details are also available at https://www.ndis.gov.au/contact
During this initial contact the NDIA can provide you with further information regarding access requirements and will confirm your age, Australian residency status and disability. You may also be asked about your required interventions, or as NDIS defines it, the 'reasonable and necessary supports you need to live an ordinary life'. The NDIA may then issue you an NDIS Access Request Form to complete.
I have an Access Request Form. What next?
You can complete the form yourself and return it to the NDIA where your eligibility will be assessed. You may also be able to find a commercial operator who is willing to assist you to complete the application for a fee. Alternatively see the next paragraph that details how PACT can help.
PACT Can Help!
If you are a PACT member you may like to progress your NDIS Access Request, based on Parkinson's Disease, by using our free and confidential NDIS Access mentoring service. Our mentors are PACT members with experience in preparing NDIS Access Requests either for themselves or for others. If you are a PACT member who would like this help, please send a brief email seeking this support to pactNDIShelp@parkinsonsact.org.au . A mentor will then contact you to discuss your needs.
A Word of Caution However ...
Your NDIS Access request is your request. Our PACT NDIS mentors will do their best to help you to develop a robust and truthful claim for NDIS Access within the guidelines. Our mentors however are not qualified NDIS experts. They are PACT members with experience in applying for NDIS Access who are willing to use that experience to help you complete your Access Request. Their services are offered in good faith, but neither PACT nor the mentors can guarantee your application will be accepted, nor can PACT or the mentors take responsibility for any outcomes from your Access Request.
Can PACT help with non-Parkinson's NDIS Access?
Unfortunately PACT NDIS mentors do not have the knowledge to assist with NDIS Access applications for conditions other than Parkinson's Disease. If this applies to you it is suggested a good starting point is the NDIS information at https://www.ndis.gov.au/applying-access-ndis/am-i-eligible and then go to https://www.ndis.gov.au/about-us/operational-guidelines/access-ndis-operational-guideline/access-ndis-disability-requirements
If you don't have internet access to find these resources, or if you need more advice after reading them, it is suggested you contact the NDIA on 1800 800 110.
I'd Like to Know More About Becoming a Mentor.
If you are a PACT member with experience in preparing NDIS Access Requests, either for yourself or for others, and would like to explore becoming a mentor please drop an email indicating your interest to pactNDIShelp@parkinsonsact.org.au . A PACT mentor will then contact you to discuss the role of a mentor.
I'm not a member of PACT. How can I join?
If you are not yet a PACT member the easiest way to join is by completing the membership form at https://www.parkinsonsact.org.au/membership. This link also provides advice on other ways to join. Once you are a member you can seek NDIS support from our mentors.
Any Other Questions?
Drop an email to pactNDIShelp@parkinsonsact.org.au outlining your questions and a PACT mentor will get in touch to assist you.